Enhancing PNH Care: Collaborative Decision-Making and Improving Patient Experience

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Panelists discuss how a patient-centered approach, shared decision-making, and clear communication between physicians, patients, and caregivers are essential in improving care, treatment adherence, and long-term management for individuals with paroxysmal nocturnal hemoglobinuria (PNH).

This program was made possible with support from Novartis Pharmaceuticals.

Recognizing PNH and Initial Challenges

EP. 1: Recognizing PNH and Initial Challenges

David Dingli, MD, PhD;Brandi Lewis
December 19th 2024

Panelists discuss how Brandi first noticed symptoms leading to her paroxysmal nocturnal hemoglobinuria (PNH) diagnosis, highlighting the challenges of the initial diagnostic process, and explore the impact of fatigue and brain fog on her daily life. They also address how clinicians assess the severity of these symptoms during consultations and what they indicate about disease progression or treatment needs.